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Data protection

Information on data protection and data security at the Kompetenznetz Maligne Lymphome e.V.

The protection of personal data is important to the Kompetenznetz maligne Lymphome e.V. (KML). We process personal data collected during visits to our website in compliance with the applicable data protection regulations. Personal data will of course not be published or passed on to third parties without authorization, unless you give us your consent to do so or we are legally obliged to do so.


Legal regulations

Your data will be protected by us within the framework of legal regulations. Such regulations include, in particular, the German Federal Data Protection Act (BDSG), the European Union Data Protection Regulation (EU-DSGVO) and the German Telemedia Act (TMG). The legal texts can also be found on the website of the Federal Ministry of Justice and Consumer Protection at www.gesetze-im-internet.de.


Adaptation of the data protection declaration

In the course of further development of our website as well as possible changes to the legal situation regarding data protection, adjustments to this data protection declaration may become necessary. We would like to ask you to inform yourself regularly about our data protection declaration.


Use of personal data

Personal data is information that allows conclusions to be drawn about a person. This includes information about personal or factual circumstances of a specific or identifiable person, such as name, address, telephone number, e-mail address and IP address.
If personal data is collected, we undertake to use it only in accordance with the statutory provisions and only with your consent. Your personal data will not be passed on to third parties or used for advertising purposes unless you have consented to this or the release of your data is required by law.  You can request information about the personal data stored by us at any time. You also have the right to object to the storage and to have data deleted, corrected or transferred.


Use of non-personal data (cookie notice)

For the most part, you can use our website without providing your personal data. In order to optimize our web presence, we collect access data without personal reference, which can be used to create a usage profile. Cookies (small text files) can be used for this purpose.  Cookies are used to determine the number of visitors and frequency of use of our website, but do not allow any conclusions to be drawn about the user. Most of the cookies we use are so-called "session cookies". They are automatically deleted after the end of your visit. Other cookies remain stored on your computer until you delete them.  These cookies allow us to recognize your browser on your next visit. 
You can set your browser to notify you before cookies are stored or to deactivate the storage of cookies in general.  

If you would like to change your cookie settings, please click here.


Open Street Map (OSPF)

We use the mapping services of the OpenStreetMap Foundation (address: St John's Innovation Centre, Cowley Road, Cambridge, CB4 0WS, United Kingdom) in the geographic display of the Sites. Your internet browser or internet application connects to servers operated by OSMF and located in the United Kingdom and other countries. The operator of this website has no control over these connections and the processing of your data by OSMF. For more information about the processing of user data by the OSMF, please see: wiki.osmfoundation 



We use MapBox API, a service provided by MapBox Inc (address: 740 15th Street NW, 5th Floor, Washington, District of Columbia 20005, USA) hereinafter only referred to as "MapBox". We use MapBox to visually display geographic information. When using MapBox, MapBox also collects, processes and uses data about visitors' use of the map features.
Through certification under the EU-US Privacy Shield ("EU-US Privacy Shield"), MaBox guarantees that EU data protection requirements are also met when processing data in the USA. The legal basis is Art. 6 para. 1 lit. f) DSGVO. Our legitimate interest lies in optimizing the functionality of our website.
When you call up one of our Internet pages in which the MapBox service is integrated, MapBox stores a cookie on your end device via your Internet browser. This transfers information about your use of our website, including your IP address, to a MapBox server in the USA and stores it there. This data is processed for the purpose of displaying the website or ensuring the functionality of the MapBox service. MapBox may share this information with third parties if required by law or if the information is processed by third parties on behalf of MapBox. The "Terms of Service" provided by MapBox at https://www.mapbox.com/tos/#maps contain further information about the use of MapBox and about the data obtained by MapBox. If you do not agree to this processing, you have the option to prevent the installation of cookies by making the appropriate settings in your Internet browser. Details on this can be found above under the item "Cookies". However, the use of the MapBox service via our website is then no longer possible. In addition, MapBox provides information on the collection and use of data as well as your rights and options for protecting your privacy at https://www.mapbox.com/privacy/weitere.


Registrations / Forms

If you register or log in to the study register, press or member area using our forms, the information you provide in the form, including the contact data you enter there, will be stored by us. We do not pass on this data without your consent.
We would like to point out that unencrypted data transmission via web forms can have security gaps. For this reason, we cannot guarantee the confidentiality of the transmitted information.
If you would like to be included in the information distribution list of the Competence Network and receive regular information about events, new publications, projects and training dates, we need your e-mail address and confirmation that you agree to receive the newsletter. This data is only collected for the purpose of being able to send you the newsletter and to document our authorization in this regard. If you provide us with further personal data in addition to your e-mail address, you agree to its use in accordance with the aforementioned conditions. You can revoke your order for the newsletter and your consent to the storage of your data at any time: info@lymphome.de


Right of appeal to the competent supervisory authority

In the event of violations of data protection law, the person concerned has a right of appeal to the competent supervisory authority. The competent supervisory authority in matters of data protection law is the State Data Protection Commissioner of North Rhine-Westphalia. The contact details can be found at the following link: https://www.ldi.nrw.de/index.php .


Healex ClinicalSite

The KML uses the third-party service Healex ClinicalSite to display clinical studies, participating treatment centers and manage study documents. This study management system allows researchers and physicians to manage clinical trials across all phases and engage and control participating stakeholders with assigned roles Datenschutzerkl√§rung Healex ClinicalSite



This privacy policy was last updated in July 2021. Due to legal changes and further developments of our website, we reserve the right to update this privacy policy. You will always find a current privacy policy on our website, please read it again from time to time.

Person responsible in the sense of the DSGVO


Responsible for the website www.lymphome.de is the:

Competence Network Malignant Lymphomas e.V.
Gleueler Street 176-178
50935 Cologne

Phone: (0221) 478 96000
Fax: (0221) 478 96001
E-mail: info@lymphome.de